Saturday was World Prematurity Day and the hashtag was trending. Seeing my social media timelines filled with images that reflected our experience of having a baby, as opposed to what is the more mainstream experience, made me feel part of a very special group of families when I often feel isolated.
It was a year since I wrote my first blog on Leo’s early arrival and I reflected how so much has changed since then. Last year, I didn’t share the whole story. We were still relieved to be at home and seeing our baby thrive. We were enjoying normal baby things. We had our First Christmas coming up. I hadn’t fully allowed myself to feel the anger and grief that was circling around my head and I was still very much in the ‘taking it a day at a time’ headspace thinking that eventually, our life would plateau out.
Earlier this year I shared the information I had left out in this initial blog; our baby had suffered a brain haemorrhage and his development may be affected. On World Prematurity Day last year, I was putting my fingers in my ears saying ‘la, la, la’ and still hoping for the unlikely outcome that Leo would not be impacted by the damage caused. In fact, ‘hope’ was the theme of the blog.
Ten months in… A while since I wrote my last blog. What does prematurity look like ten months on?
When we first brought Leo home. He was like any newborn – just smaller. He fed, he cried, he slept, he pooped, he thrived on cuddles. In a matter of weeks that would change as he underwent neurosurgery but soon we were back on the ‘normal’ newborn train. Eat, sleep, poop, cuddle and repeat.
In the last ten months Leo has grown, he sleeps all night, he makes adorable sounds, he kicks and wriggles, he enjoys porridge and purees and he puts things in his mouth. He is alert, aware and one of the cheeriest souls you will meet.
At ten months I see the distance with Leo and other babies widening. I know, I know. Don’t compare. All babies are different. They all do what they want and when they want. Leo doesn’t sit or roll… yet! But boy are we working hard. We’re filling 3-6 months vests now so we are on our way.
#PrematurityIs being told your baby is on his way into the world, foot first, at 25 weeks in the wrong city.
Friday 17 November is World Prematurity Day and the charity, Bliss, is doing a great job of raising awareness of prematurity. Prematurity is the leading cause of death in children under five around the world. One in ten babies is born prematurely.
I have had some experience of prematurity in my life so far. I was born five weeks premature. My youngest sister, Taylor, was born ten weeks premature. There were no signs during the pregnancy that my son, Leo, would be born at 25 weeks and 6 days. It had been plain sailing before that.